We have an all-volunteer Board comprised of impacted individuals and family members, professional people in our community, and medically trained specialists. We employ one full-time person, Carla Wells, as our Executive Director. Click here to learn more.
For the past 50 years, The Northwest Ohio Hemophilia Foundation has assisted individuals and families affected by bleeding disorders. Through family networking events, maintaining a crisis fund, providing medical identifications, facilitating educational workshops, and advocating at the local, state, and national level on critical legislation, our Foundation is committed to helping people manage their condition.
Our Foundation believes that education is a critical component of managing a bleeding disorder, as is interacting and learning from other impacted families. We offer a wide range of educational meetings from learning to advocate for yourself to dealing with insurance to fitness and nutrition. Additionally, each year, we provide scholarships to send youth to Camp Bold Eagle where kids experience a traditional summer camp while learning the valuable skills they need in order to become independent teens and adults.
Medical Identifications: We provide medical identifications to all with a significant bleeding disorder, such as hemophilia and VonWillebrand Disease. Free of charge, these identifications are potentially life-saving.
Emergency Financial Assistance: We set aside funds each year for emergency financial assistance for those who are experiencing financial hardships related to their bleeding disorder.
Advocacy: We actively participate at a local, state, and national level and encourage our members through education and legislative days. Our community has a long history of making an impact on legislation, and telling their story to legislators is vital with critical legislation.
Have a question or want to learn more about how you can get involved? Contact us today and we'll be happy to help.
National Bleeding Disorders Foundation:
Established in 1948, the National Bleeding Disorders Foundation has been dedicated to finding treatments and cures for inherited bleeding disorders. We are proud to be a chapter representing a shared mission.
Hemophilia Federation of America:
The Hemophilia Federation of America is a patient advocacy organization serving the rare bleeding disorders community. We partner on various programs throughout the year to provide the community the opportunity to learn and share together.
Northwest Ohio Hemophilia Treatment Center:
Located at Toledo Children’s Hospital, the Northwest Ohio Hemophilia Treatment Center is federally-funded and provides a team of experts to manage the medical care of affected patients. Our Foundation works very closely with The Northwest Ohio Treatment Center.
Our Foundation maintains a relationship with manufacturers and specialty pharmacies. Many of our events and programs are sponsored by one or more of our industry partners.